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A Gift of Time: Continuing Your Pregnancy When Your Baby's Life Is Expected to Be Brief
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A Gift of Time: Continuing Your Pregnancy When Your Baby's Life Is Expected to Be Brief
448Paperback(second edition)
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Overview
When prenatal testing reveals that an unborn child is expected to die before or shortly after birth, some parents will choose to proceed with the pregnancy and to welcome their child into the world. With compassion and support, A Gift of Time walks them step-by-step through this challenging and emotional experience—from the infant's life-limiting prenatal diagnosis and the decision to have the baby to coping with the pregnancy and making plans for the baby’s birth and death.
A Gift of Time also offers inspiration and reassurance through the memories of numerous parents who have loved a child who did not survive. Their moving experiences are stories of grief—and of hope. Their anguish over the prenatal diagnosis turns to joy and love during the birth of their child and to gratitude and peace when reflecting on their baby’s short life.
Full of practical suggestions for parents and for caregivers, A Gift of Time also features the innovative concept of perinatal hospice and palliative care. Caring and thoughtful, the book helps parents embrace the extraordinary time they will have with their child.
Product Details
ISBN-13: | 9781421446707 |
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Publisher: | Johns Hopkins University Press |
Publication date: | 09/05/2023 |
Series: | A Johns Hopkins Press Health Book |
Edition description: | second edition |
Pages: | 448 |
Product dimensions: | 6.00(w) x 9.00(h) x 1.15(d) |
About the Author
Deborah L. Davis, PhD (DENVER, CO), is a developmental psychologist, writer, and expert in neonatal medical ethics and perinatal bereavement. She is the author of Empty Cradle, Broken Heart and the coauthor of Parenting Your Premature Baby and Child. Her blog Laugh, Cry, Live explores a wide range of topics at PsychologyToday.com.
Table of Contents
Introduction xi
1 The News: Receiving Your Baby's Diagnosis 1
Before the Diagnosis 2
Understanding Diagnostic Prenatal Testing 4
Receiving the News 6
The Immediate Emotional Storm 13
2 What Now?: Making Decisions about Continuing Your Pregnancy 18
Facing the Decision 18
Options Presented 20
Perinatal Hospice and Palliative Care 26
Gathering Information 29
Sorting through Your Values 38
Making Decisions with Your Partner 42
Consulting with People You Trust 44
Deciding to Continue 46
3 The Emotional Journey: Grieving and Adjusting to Your New Path 53
Anticipatory Grief 54
An Overview of the Grieving Process 55
Evolving Emotions 59
Confronting Fears 67
Techniques for Coping 73
You and Your Grieving Partner 76
Your Other Children 79
Spiritual and Philosophical Aspects 85
Living in the Twilight of Death 87
Reclaiming Hope 88
Your Reorientation and Adjustment 91
4 Waiting with Your Baby: Settling in for the Rest of Your Pregnancy 93
Interacting with Others 94
Finding Support 111
Getting Appropriate Medical Care 115
Embracing the Time Remaining 130
5 Making Medical Decisions: Choosing Care for Your Baby 140
Researching Your Baby's Condition 141
Researching Your Baby's Treatment Options 142
Ambivalence about Medical Decisions 148
Seeking Outside Advice 150
Deciding to Wait and See 152
Opting for Hospice and Palliative Care 154
6 Getting Ready: Preparing for Your Baby's Birth, Life, and Death 165
Birth Planning 165
Wishes for after Your Baby's Birth 174
Including Your Baby's Siblings 181
Including Your Family and Friends 182
Other Practical Preparations 184
Preliminary Funeral and Burial Planning 184
Getting Closer to Birth 189
7 Welcoming Baby: Birth Experiences and Meeting Your Baby 193
Approaching the Time of Birth 194
When Birth Is Imminent 198
Meeting Your Baby 206
If Your Baby Lives after Birth 222
Taking Baby Home 233
8 Saying Goodbye: Holding On and Letting Go 246
Parenting Your Dying Baby 247
The Dying Process 247
Experiences with Babies as They Are Dying 248
Time with Your Baby after Death 264
Decisions about Your Baby's Body 275
Relinquishing Your Baby's Body 278
Funerals and Memorial Services 284
Your Baby's Final Resting Place 293
9 Continuing Your Journey: After Your Baby Dies 298
The Mother's Postpartum Recovery 299
Your Grieving Process Continues 302
Identifying Your Feelings 313
More Techniques for Coping 318
Regrets and Making Peace with Them 320
You and Your Partner 323
Your Other Children 326
Dealing with the Outside World 329
Subsequent Pregnancies 335
10 Reflections 339
Reflections on Your Journey 340
Spiritual Beliefs and Struggles 352
Long-term Reflections on Grief and Healing 360
Personal Transformation 367
If You Could Reach Back in Time... 371
Moving Forward with Gratitude 372
Appendix. Sample Birth Plan 375
Notes 377
Index 385
What People are Saying About This
These knowledgeable authors speak eloquently for families, parents, prospective parents, and health care professionals across many disciplines who share in the experiences of life with, and without, a hoped-for 'perfect baby.' A thread of continuity runs across the gestational journeys of real parents grappling with bad and sad news, complex interwoven lives, and the hard work of seeking to bring joy into brief, yet eternal, moments together with their babies. The book will mean so much to those who have already endured these trials as well as those who are met daily with such news.
Brian S. Carter, M.D., Monroe Carell Jr. Children's Hospital at Vanderbilt
My team frequently counsels families coping with the heartache of managing a fetus or child with severe malformations that result in a life-limiting condition. We offer Ms. Kuebelbeck’s book to them, as many have found it a comforting resource. Her personal story and compassionate insights can help some families face the practical and emotional challenges they find along their journey.
These knowledgeable authors speak eloquently for families, parents, prospective parents, and health care professionals across many disciplines who share in the experiences of life with, and without, a hoped-for 'perfect baby.' A thread of continuity runs across the gestational journeys of real parents grappling with bad and sad news, complex interwoven lives, and the hard work of seeking to bring joy into brief, yet eternal, moments together with their babies. The book will mean so much to those who have already endured these trials as well as those who are met daily with such news.—Brian S. Carter, M.D., Monroe Carell Jr. Children's Hospital at Vanderbilt
My team frequently counsels families coping with the heartache of managing a fetus or child with severe malformations that result in a life-limiting condition. We offer Ms. Kuebelbeck’s book to them, as many have found it a comforting resource. Her personal story and compassionate insights can help some families face the practical and emotional challenges they find along their journey.—Simon Manning, MD, Director of the Perinatal Palliative Care Program, Brigham and Women's Hospital