Buying your Self on the Internet: Wrap Contracts and Personal Genomics

by Andelka M. Phillips

Overview

This book examines the rise of the direct-to-consumer genetic testing industry (DTC) and its use of 'wrap' contracts. It uses the example of DTC to show the challenges that disruptive technologies pose for societies and for regulation. It also uses the wrap contracts of DTC companies to explore broader issues with online contracting.

Product Details

ISBN-13:	9781474422598
Publisher:	Edinburgh University Press
Publication date:	07/21/2019
Series:	Future Law
Pages:	320
Product dimensions:	6.14(w) x 9.21(h) x (d)

About the Author

Andelka M. Phillips is a Senior Lecturer in Law, Science and Technology at TC Beirne School of Law, University of Queensland, Australia. She is a writer and academic whose research interests lie in the areas of Information Technology Law and Health and Medical Law. She was formerly the Ussher Assistant Professor in Information Technology Law at Trinity College Dublin and the Convenor of Trinity College Dublin Law School’s Technology, Law and Society Research Group.

Table of Contents

Table of Statutes Table of Cases
1. Direct-To-Consumer Genetic Testing and Regulating Disruptive Technology
1. Introduction
2. Aims of This Book
3. Guidance for Readers
4. What Is Personal Genomics or Direct-to-Consumer Genetic Testing?
5. Summary of How DTC Services Operate
6. Bringing Disruptive Technology to the Public
7. Data Deluge
8. Methodology
9. How Should the DTC Industry Be Regulated? The Policy Response to Date
10. Sources of Law Which Might Be Applicable to DTC in the UK and EU
11. What Can Go Wrong?
12. Conclusion

2. The Science behind that Click of the Mouse
1. Introduction
2. The Nature of Genetic Information and Genetic Exceptionalism
3. Recent Advances in Genetic and Genomic Science
4. Conclusion

3. The Rise of Personal Genomics – Overview of the Direct-to-Consumer Genetic Testing Industry
1. Introduction
2. Overview of the DTC Industry
3. Health Tests
4. Ancestry Testing
5. Genetic Relatedness Testing
6. Testing for Athletic Ability
7. Testing for Child Talent and Testing of Children
8. Surreptitious (‘Infidelity’) Testing
9. Match Making Testing
10. Conclusion

4. Privacy, Data Protection, and Security in the Context of Direct-to-Consumer Genetic Testing Services
1. Introduction
2. General Data Protection Regulation (GDPR)
3. The UK’s Data Protection Legislation
4. Privacy Policies and Notices and Website Design
5. US Privacy Law
6. Canadian Genetic Privacy Law
7. Secondary Use of Genetic Databases – the Golden State Killer and Beyond
8. Indigenous Peoples and Data Sovereignty
9. Privacy Best Practices for Consumer Genetics Testing Services (July 2018)
10. Conclusion

5. Clicking Away Rights in DNA: A Review of DTC Contracts
1. Introduction
2. Challenging Unfair Terms in DTC Contracts
3. Conclusion

6. Future Directions for DTC Governance
1. Note for Readers Interested in Purchasing DTC Tests
2. Suggestions for Reform
3. Final Thoughts

Bibliography