Ethics and Integrity in Health and Life Sciences Research

by Zvonimir Koporc

Overview

Life and health sciences and biomedical studies have developed rapidly over the last few decades raising previously unanticipated ethical concerns and questions. New and emerging technologies require novel approaches, protocols and raised awareness to ensure adequate levels of biosecurity and biosafety as well as the implementation of special measures to prevent their potential misuse or dual use. 
This volume brings together an international collection of prominent ethics experts in health and life sciences, with the aim of providing clear and comprehensive guidelines for the establishment of efficient ethical strategies related to current and emerging biotechnologies and health research. 
Important current topics in research ethics including CRISPR-Cas9 technologies, gene editing, ‘big data’ in healthcare and life sciences, nutrition in medicine among other topics have found their place in this volume. In addition, the volume discusses the prospects for the implementation of an international unification of ethical standards in life sciences.

Product Details

ISBN-13:	9781787435728
Publisher:	Emerald Publishing Limited
Publication date:	12/06/2018
Series:	Advances in Research Ethics and Integrity , #4
Pages:	239
Product dimensions:	5.98(w) x 9.02(h) x (d)

About the Author

Dr Zvonimir Koporc is Associate Professor in Physiology at the Catholic University of Croatia. He has published extensively on immunology and edits the European Journal of Biology. He has achieved international recognition for expertise on research in life sciences (immunology) and professional standards in research ethics. His primary consultative activity in ethics and in life sciences. Zvonimir has acted as consultant, adviser and/or delivered training on research ethics at the European and national level. His PhD in chemistry was awarded by the Technical University of Vienna, Austria.

Table of Contents

Introduction: Research Production in Life Sciences; Zvonimir Koporc 
Chapter 1. Promoting Equity and Preventing Exploitation in International Research: The aims, work and output of the TRUST project; Julie Cook, Kate Chatfield & Doris Schroeder 
Chapter 2. Ebola Virus Disease: A lesson in science and ethics; Nicola Petrosillo & Rok Čivljak 
Chapter 3. Ethics Challenges in the Digital Era: Focus on medical research; Albena Kuyumdzhieva 
Chapter 4. Big Data in Healthcare and the Life Sciences; Janet Mifsud & Cristina Gavrilovici 
Chapter 5. Shaping a Culture of Safety and Security in Research on Emerging Technologies: Time to move beyond ‘simple compliance’ ethics; Monique Ischi & Johannes Rath 
Chapter 6. Governing Gene Editing in the European Union: Legal and ethical considerations; Mihalis Kritiko
Chapter 7. The ARRIGE Project; Francois Hirsch & Lluis Montoliu 
Chapter 8. Dual Use in Neuroscientific and Neurotechnological Research: A need for ethical address and guidance; James Giordano & Kathinka Evers 
Chapter 9. Ethical Challenges of Informed Consent, Decision-Making Capacity and Vulnerability in Clinical Dementia Research; Pablo Hernández-Marrero, Sandra Martins Pereira, Joana Araújo & Ana Sofia Carvalh
Chapter 10. Diet Therapy - Effective Treatment but also Ethical and Moral Responsibility; Jasenka Gajdoš Kljusuri
Chapter 11. The Mismatch of Nutrition and ‘Medical Practice’: The wayward science of nutrition in human health; T Colin Campbell & T Nelson Campbell

Editorial Reviews

This volume compiles 11 essays by bioethics, medical, and other researchers from Europe and the US, who explore ethics and integrity in health and life sciences research. They address the work of the TRUST project towards counteracting the practice of ethics dumping through the development of tools for the improvement of research governance structures; lessons learned from care of patients with the Ebola virus; ethical challenges in the digital era; ethical aspects relating to big data; governance approaches to safety and security in research in relation to emerging technologies; governing gene editing in the European Union; the responsible and ethical use of genome editing technologies; ethical issues in dual-use brain science; the ethical challenges of informed consent, decision-making capacity, and vulnerability in clinical dementia research; ethical and moral responsibility in diet therapy research; and the mismatch of the science of nutrition and medical practice.

Annotation ©2019

This volume compiles 11 essays by bioethics, medical, and other researchers from Europe and the US, who explore ethics and integrity in health and life sciences research. They address the work of the TRUST project towards counteracting the practice of ethics dumping through the development of tools for the improvement of research governance structures; lessons learned from care of patients with the Ebola virus; ethical challenges in the digital era; ethical aspects relating to big data; governance approaches to safety and security in research in relation to emerging technologies; governing gene editing in the European Union; the responsible and ethical use of genome editing technologies; ethical issues in dual-use brain science; the ethical challenges of informed consent, decision-making capacity, and vulnerability in clinical dementia research; ethical and moral responsibility in diet therapy research; and the mismatch of the science of nutrition and medical practice.

Annotation ©2019