Ethics in Mental Health Research: Principles, Guidance, and Cases / Edition 1

Ethics in Mental Health Research: Principles, Guidance, and Cases / Edition 1

by James M. DuBois
ISBN-10:
0195179935
ISBN-13:
9780195179934
Pub. Date:
09/10/2007
Publisher:
Oxford University Press
ISBN-10:
0195179935
ISBN-13:
9780195179934
Pub. Date:
09/10/2007
Publisher:
Oxford University Press
Ethics in Mental Health Research: Principles, Guidance, and Cases / Edition 1

Ethics in Mental Health Research: Principles, Guidance, and Cases / Edition 1

by James M. DuBois

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Overview

Research holds a key to preventing and effectively treating mental disorders, including ADHD, depression, schizophrenia, and substance abuse. Yet even as research holds out promise, mental health researchers face numerous ethical challenges. Responsible for ensuring participants are able and willing to grant consent, researchers must also constantly protect privacy and confidentiality. But for so many situations, the appropriate decisions are not so clear. An individual with cognitive deficits may have difficulty understanding a research study and granting informed consent, but nevertheless wants to participate. Many studies gather private information about medical records or illegal behaviors that could lead to emotional, social, or legal harm if shared, yet state laws and institutional review boards may require researchers to breach confidentiality in specific situations. Moreover, mental health consumers and other vulnerable research participants are frequently familiar with historical cases of abuse of human subjects, and may be mistrustful of researchers or fear exploitation.

At the same time, researchers are often frustrated when they feel that advocates or institutional review boards erect barriers to research, even while failing to enhance the ethical treatment of participants. Ethical research is rarely simply about avoiding bad activities, and more frequently about how to pursue good research when multiple values and commitments conflict.

Ethics in Mental Health Research explores how ethical issues arise in mental health research, and offers concrete guidance to researchers who seek to comply with federal regulations while conducting research that is at once ethical and scientifically credible. Case studies used throughout illustrate a variety of situations and effective problem-solving strategies. This book is essential reading for mental health researchers, IRB members, and research advocates.

Product Details

ISBN-13: 9780195179934
Publisher: Oxford University Press
Publication date: 09/10/2007
Edition description: New Edition
Pages: 256
Product dimensions: 9.20(w) x 6.20(h) x 1.00(d)

About the Author

James DuBois is the Hubert Mäder Endowed Chair and Department Chair in Health Care Ethics at Saint Louis University. He has served on several National Institute of Health scientific review groups, a National Institute of Drug Abuse data safety monitoring board, an Institute of Medicine committee on organ donation, and local institutional review boards (IRBs). His work has received significant financial support from the National Institutes of Health and the US Office of Research Integrity.

Table of Contents

Introduction: Why Focus on Mental Health Research?. 1. Ethics and Regulatory Compliance: Competing or Complementary Approaches? 2. An Ethical Framework for Research3. Solving Ethical Problems: Analyzing Ethics Cases and Justifying Decisions Case Study: Willowbrook Revisited4. Informed Consent Case Study: Withholding information on study purpose with mothers at risk of abusing children5. Decision-Making Capacity and the Involvement of Surrogates Case Study: Participation in a schizophrenia drug trial motivated by an unusual belief Case Study: Waiving parental permission for qualitative research on high-risk sex practices among teens who use heroine6. Thinking about Harms and Benefits Case Study: A study of suicidality with at-risk teens7. Justice in Recruitment and Research Case Study: Reimbursing participants for their time in a psychotherapy trial Case Study: Biological studies of aggressive behavior in preteens8. Research Questions and Study Design Case Study: Placebo controlled trials involving participants with depression9. Protecting Privacy and Confidentiality Case Study: Whether to report sex with a minor when a certificate of confidentiality has been issued10. Identifying and Managing Conflicts of Interest Case Study: Multiple illustrative vignettes
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