Genetic Counseling: Ethical Challenges and Consequences / Edition 1

by Dianne M. Bartels, Bonnie S. LeRoy, Arthur L. Caplan

Overview

Genetic counseling is fairly new. The fact that the field is an accepted professional enterprise in universities, clinics, and hospitals throughout the United States is remarkable. The contributors argue that genetics and medicine rest on beliefs widely held in American society. Scientific progress is good, and highly sophisticated technologies are appropriate means to solving medical problems. The better understanding they gain about the nature and evolution of disease, the more prepared clinicians will be to treat and prevent future occurrence of disease. A belief that medicine, including genetic medicine, is clear, factually based, and objective undergirds the strategies and norms of genetic counseling. This collection of original papers explores the history, values, and norms of that process, with focus on the value of non-directiveness in counseling practice. The contributors' examination of genetic counseling issues serves as a foundation from which to address the ethical, legal, and policy considerations of clinical genetics.

Product Details

ISBN-13:	9780202363998
Publisher:	Taylor & Francis
Publication date:	10/15/2010
Edition description:	Reprint
Pages:	340
Product dimensions:	6.12(w) x 9.19(h) x (d)

About the Author

Dianne M. Bartels, Bonnie S. LeRoy, Arthur L. Caplan

Table of Contents

Introduction to the Aldine Transaction Edition vii

List of Contributors xi

Preface xiii

Acknowledgements xix

I Evolution of Genetic Counseling

1 Genetic Counseling: Values That Have Mattered James R. Sorenson 3

2 The Training of Genetic Counselors: Origins of a Psychosocial Model Joan H. Marks 15

3 The Workplace Ideology of Genetic Counselors Charles L. Bosk 25

4 When Theory Meets Practice: Challenges to the Field of Genetic Counseling Bonnie S. LeRoy 39

II Social and Policy Issues in Genetic Counseling

5 Risk and the Ethics of Genetic Choice Marc Lappé 57

6 Discrimination Issues and Genetic Screening Dan Farber 65

7 Role of Public Policy in Genetic Screening and Counseling Phyllis Kahn 79

8 Parables Walter E. Nance 89

III Future Directions and Ethical Challenges in Genetic Counseling

9 The Impact of the Human Genome Project for Genetic Counseling Services Harry T. Orr 97

10 The Evolution of Nondirectiveness in Genetic Counseling and Implications of the Human Genome Project Beth A. Fine 101

11 Objectivity, Value Neutrality, and Nondirectiveness in Genetic Counseling Karen Grandstrand Gervais 119

12 Ethical Obligations of Genetic Counselors LeRoy Walters 131

13 Neutrality Is Not Morality: The Ethics of Genetic Counseling Arthur L. Caplan 149

IV Appendix

Appendix A National Society of Genetic Counselors Code of Ethics 169

References 173

Index 183