How to Tell When We Will Die: On Pain, Disability, and Doom

How to Tell When We Will Die: On Pain, Disability, and Doom

by Johanna Hedva
How to Tell When We Will Die: On Pain, Disability, and Doom

How to Tell When We Will Die: On Pain, Disability, and Doom

by Johanna Hedva

eBook

$11.49  $14.99 Save 23% Current price is $11.49, Original price is $14.99. You Save 23%.
Available for Pre-Order. This item will be released on September 3, 2024

Available on Compatible NOOK devices, the free NOOK App and in My Digital Library.
WANT A NOOK?  Explore Now

Related collections and offers


Overview

The long-awaited essay collection from one of the most influential voices in disability activism that detonates a bomb in our collective understanding of care and illness, showing us that sickness is a fact of life.

In the wake of the 2014 Ferguson riots, and sick with a chronic condition that rendered them housebound, Johanna Hedva turned to the page to ask: How do you throw a brick through the window of a bank if you can’t get out of bed? It was not long before this essay, “Sick Woman Theory”, became a seminal work on disability, because in reframing illness as not just a biological experience but a social one, Hedva argues that under capitalism—a system that limits our worth to the productivity of our bodies—we must reach for the revolutionary act of caring for ourselves and others.

How to Tell When We Will Die expands upon Hedva’s paradigm-shifting perspective in a series of slyly subversive and razor-sharp essays that range from the theoretical to the personal—from Deborah Levy and Susan Sontag to wrestling, kink, mysticism, death, and the color yellow. Drawing from their experiences with America’s byzantine healthcare system, and considering archetypes they call The Psychotic Woman, The Freak, and The Hag in Charge, Hedva offers a bracing indictment of the politics that exploit sickness—relying on and fueling ableism—to the detriment of us all.

With the insight of Anne Boyer’s The Undying and Leslie Jamison’s The Empathy Exams, and the wit of Samantha Irby, Hedva’s debut collection upends our collective understanding of disability. In their radical reimagining of a world where care and pain are symbiotic, and our bodies are allowed to live free and well, Hedva implores us to remember that illness is neither an inconvenience or inevitability, but an enlivening and elemental part of being alive.


Product Details

ISBN-13: 9781638931171
Publisher: Zando - Hillman Grad Books
Publication date: 09/03/2024
Sold by: Barnes & Noble
Format: eBook

About the Author

Johanna Hedva (they/them) is a Korean American writer, artist, and musician who was raised in Los Angeles by a family of witches and now lives in LA and Berlin. They are the author of the novels Your Love Is Not Good and On Hell, and the collection of poetry, performances, and essays, Minerva the Miscarriage of the Brain. Their artwork has been shown internationally, and their albums are Black Moon Lilith in Pisces in the 4th House and The Sun and The Moon.
From the B&N Reads Blog

Customer Reviews