Pediatric Palliative Care: A Model for Exemplary Practice

by Betty Davies, Rose Steele, Jennifer Baird

Overview

Pediatric Palliative Care: A Model for Exemplary Practice lays out a road map for health-care providers interested in optimizing care for seriously ill children and their families.

Grounded in clinical practice and the study of positive rather than problematic encounters between providers and parents, the book presents an evidence-based model of exemplary interaction. The chapters offer a clear understanding of the complex, holistic process of interaction between providers and parents, as well as the personal and professional knowledge and skills needed to interact in optimal ways.

This is a one-of-a-kind guidebook for health-care providers interested in (re)discovering how to maximize positive outcomes for both families and providers. It is also a valuable source of inspiration for educators, supervisors, and hospital administrators who want to facilitate personal and professional development and create supportive environments for students, providers, seriously ill children, and their families.

Product Details

ISBN-13:	9780367365691
Publisher:	Taylor & Francis
Publication date:	12/22/2021
Series:	Series in Death, Dying, and Bereavement
Pages:	244
Product dimensions:	6.00(w) x 9.00(h) x (d)

About the Author

Betty Davies, MSN, PhD, is an adjunct professor in the School of Nursing, University of Victoria, British Columbia, Canada, and professor emerita in the Department of Family Health Care Nursing at the University of California, San Francisco, USA.

Rose Steele, RN, PhD, is a full professor in the School of Nursing, Faculty of Health, York University, Toronto, Ontario, Canada.

Jennifer Baird, RN, MPH, MSW, PhD, is the director of Clinical Services Education and Research at Children’s Hospital Los Angeles, California, USA.

Table of Contents

1. Introduction to interaction 2. Metaphor and Overview of Model of Exemplary Interaction 3. Worldview, Values, and Commitment to Authentic Engagement 4. Process of Attuning 5. Direct Care Activities 6. Connecting Behaviors 7. Personal Influencing Factors 8. Pediatric Health-Care Provider-Parent Relationship 9. Setting and Teamwork Contextual Factors 10. Institutional and Societal Contextual Factors 11. Output From Exemplary Interaction: A Milieu of Mattering 12. Implications of the Model of Exemplary Interaction

Editorial Reviews

"Pediatric Palliative Care is an incredible resource for those interested in or working with pediatric palliative—or in general palliative care. Coming from years of experience in the field, the authors provide essential and timely suggestions for practitioners. Simply put, this book is bound to be a classic!"

Kenneth J. Doka, PhD, senior consultant, The Hospice Foundation of America, USA

"A new way of looking at the age-old issue of how to best care for ill children and their families is just what is needed—and is exactly what you will find here. This is an evidence-based and creatively engaging read that skillfully uses the image of a windmill to connect the science with the heart of best clinical practice."

Stephen Liben, MD, professor of pediatrics, McGill University, Montreal, Canada

"Firmly grounded in qualitative research and clinical insight, this book offers a model that illuminates the components of exemplary interaction. It is a call for the humanization of care and a tribute to clinicians who excel in their interactions with families, educators who teach human-to-human care, and health administrators who seek to create a culture of optimal care that sustains both families and health care providers."

Danai Papadatou, PhD, professor of clinical psychology, Faculty of Nursing, National and Kapodistrian University of Athens, Greece

"This unique book analyzes what is good in health care behaviors to show what goes into authentic engagement and exemplary interaction. These lessons from pediatric palliative care apply across a wide range of settings, cultures, and disciplines. An exceptional contribution to improving health care, highlighted by a distinctive windmill model."

Charles A. Corr, PhD, professor emeritus, Southern Illinois University Edwardsville, USA

From the Publisher

Reviewer: Nicole Sartor, DNP, APRN, CPNP-PC, CHPPN (North Carolina Children's Hospital)
Description: This book covers an evidence-based approach to optimizing interactions between healthcare providers and parents who care for children with serious illness. The authors have created a roadmap that guides experienced clinicians and learners in communication that honors the intrinsic value of the individuals they serve.
Purpose: The purpose of this book is to provide a blueprint for consistently providing exceptional care to children with serious illness and their families. The authors offer guidance in humanizing the people they are caring for through consistent, relational connection. The objectives are worthy and needed. The book meets these objectives through presenting an evidence-based guide for team-based care of seriously ill children and their families that honors the healthcare provider and the family's humanity.
Audience: This book is written for pediatric healthcare providers who want to consistently provide exemplary care to seriously ill patients and families. The book meets this need through providing a model for communication that is relational and built on the human connection. It utilizes a prairie windmill metaphor to help pediatric healthcare providers engage in meaningful interactions with patients, families, students, and colleagues as people, in turn, humanizing health care. The authors are uniquely qualified to write about humanism in pediatric palliative care with years of clinical and research experience in this area.
Features: This book covers tools and strategies for pediatric healthcare providers to consistently engage in authentic interactions with sick patients, their families, and other healthcare providers. They build each chapter around a model that comes together to optimize interactions. They engage the readers' critical thinking through questions and concepts that help clinicians bring their humanity to the care they provide. The use of quotes from patients and providers helps the readers reflect on their own encounters and consider the impact of their culture and worldview on daily interactions. The authors hope to inspire the readers to consistently bring their authentic selves to every interaction. There is a content page, a list of boxes, figures, and tables, and an index to help the readers orient to the content.
Assessment: This book does an excellent job of presenting an evidence-based approach to care that can guide pediatric healthcare providers in consistently being present in interactions with their patients, learners, and each other. The book is intended for interprofessional audiences from novices to experienced providers. The authors accomplish their goals through concepts such as patient and family centered care that is tailored to personhood, agreed upon, and communicated through narrative medicine. This is a stark contrast to interactions that are frequently scripted and difficult to reflect in the electronic health record.

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