Supportive care for the person with dementia

by Julian Hughes, Mari Lloyd-Williams, Greg Sachs

Overview

Sportive care can be thought of as an extension of palliative care so that the person with dementia receives good quality, holistic care that makes no distinctions between the dichotomies of care and cure from the time of diagnosis until, and beyond, death. It recognizes the need for an inter-disciplinary approach for continuity of care. Supportive care in dementia must, therefore, be broad in its scope and application.

Supportive Care of the Person with Dementia provides just such a broad and full perspective, drawing upon the experience and expertise of a wide range of internationally-based professionals to outline a model of supportive care that will provide good quality and holistic care for people with dementia. Making use of real-life reports from both patients and carers to help readers fully understand the reality of dementia, the book examines the key principles that guide the practice of supportive care. It looks at how supportive care can be used, and specific benefits a care model of this type can bring to the complex problems that are frequently encountered when treating this condition.

It is an ideal resource for all clinicians who are part of an interdisciplinary team caring for sufferers with this debilitating illness.

Product Details

ISBN-13:	9780199554133
Publisher:	Oxford University Press
Publication date:	02/01/2010
Series:	Supportive Care
Pages:	330
Product dimensions:	6.60(w) x 9.80(h) x 1.00(d)

About the Author

Dr Julian C Hughes read Philosophy, Politics and Economics at Oxford prior to studying medicine in Bristol. He then served in the Royal Air Force, but completed his higher training in psychiatry in Oxford and, at the same time, undertook a PhD in Philosophy at Warwick. Since taking up consultant posts, first in Newcastle, and subsequently in North Tyneside, he has pursued his academic interest in ethics and philosophy in connection with ageing and dementia. This has led to a particular interest in palliative care in dementia. He was an advisor on ethics and palliative care to the NICE-SCIE Guideline on Dementia, which reported in 2006, and a member of the Dementia Working Party of the Nuffield Council on Bioethics, which reported in 2009. Professor Mari Lloyd-Williams qualified from Leicester University medical school and following posts in oncology, general medicine, psychiatry and primary care completed her higher training in palliative medicine at University of Leicester Hospitals and LOROS Hospice and was appointed Consultant and Honorary Senior Lecturer to the University of Leicester Hospitals Trust and LOROS Hospice in 2000. In 2002 she was appointed as Senior Lecturer at the University of Liverpool and in 2003 was promoted to a personal chair within the School of Population, Community and Behaviour in recognition of her research experience and portfolio. She has published over 100 papers and the acclaimed book " Psychosocial Issues in Palliative Care" has recently appeared in a second edition and she lectures both nationally and internationally. Dr. Sachs received his B.A. from the University of Chicago in 1981 and his MD from Yale University in 1985. He trained in internal medicine at the University of Chicago, staying on to complete a combined three-year geriatrics and clinical ethics fellowship under the mentorship of Dr. Christine Cassel. Dr. Sachs joined the University of Chicago faculty in 1990 and became the founding Chief of the new Section of Geriatrics there in 2000, serving in that role until his move to IU in the summer of 2007.

Table of Contents

1. Characterizing care, Julian C. Hughes, Mari Lloyd-Williams, and Greg A. Sachs2. An introduction to the dementias: a clinical view, David Jolley3. The view of the person with dementia, Daphne Wallace4. The view of the family carer, Barbara Pointon5. Offering supportive care in dementia: reflections on the PEACE programme, Joseph W. Shega and Greg A. Sachs6. Services for younger adults with dementia, Bob Barber and Helen Cooper7. Huntington's disease and dementia, Belinda Bilney and Meg E. Morris8. Patients with HIV-associated dementia, Mary Ann Cohen and Charles E. Schwartz9. Down's syndrome and dementia: a framework for practice to support people with Down's syndrome and dementia living in generic care homes, Heather Wilkinson and Karen Watchman10. Dementia care in developing countries, Sivaraman Shaji11. Ingredients and issues in supportive care for people with dementia: summarizing from models of care, Julian C. Hughes, Mari Lloyd-Williams, and Greg A. Sachs12. Pharmacological management of neuropsychiatric symptoms in people with dementia, Clive Ballard and Dag Aarsland13. Hospital admissions in dementia, Elizabeth L. Sampson14. Distress and pain in dementia, Alice Jordan and Mari Lloyd-Williams15. The role of the family doctor in supportive care for people with dementia, Gillie E. Evans and Louise Robinson16. Community mental health nursing and supportive care, John Keady and Philip Hardman17. From psychological interventions to a psychology of dementia, Graham Stokes18. Supportive care: social care and social work approaches, Jill Manthorpe19. Care homes and long-term care for people with dementia, Katherine Froggatt and Deborah Parker20. Assisted living programmes providing supportive care for dementia, Philip D. Sloane and Sheryl Zimmerman21. Spiritual care of people with dementia and their carers, Stephen Sapp22. Anticipatory and disenfranchised grief among dementia family caregivers: helping spouse and adult/child caregivers to cope, Jacquelyn Frank23. Communicating with people with dementia, Kate Allan and John Killick24. Maintaining the self in dementia, Steven R. Sabat25. Person-centred care as supportive care, Murna Downs26. Narrative, supportive care, and dementia: a preliminary exploration, Clive Baldwin27. Persons with severe dementia and the notion of bodily autonomy, Wim Dekkers28. Advance care planning: an American view, Muriel R. Gillick29. Advance care planning and palliative care in dementia: a view from the Netherlands, Cees Hertogh30. Living and dying at home with dementia, Adrian Treloar and Monica Crugel31. Namaste care and dying in institutional settings, Joyce Simard and Ladislav Volicer32. The principles and practice of supportive care in dementia, Julian C. Hughes, Mari Lloyd-Williams, and Greg A. Sachs

Editorial Reviews

Reviewer: David O. Staats, MD (University of Oklahoma Health Sciences Center)
Description: Part of the Supportive Care series, this multiauthored book on the supportive care model of caring for persons with dementia and their loved ones combines views from the U.S., the U.K., and the Netherlands.
Purpose: Its purpose is to explore supportive care teams integrating the biomedical, psychological, and social domains of persons with dementing illnesses and their loved ones. The authors provide a wide-ranging discussion of these important topics.
Audience: The caring professionals who orchestrate care for persons with dementia will derive the most benefit from this book. The authors are all experts in their fields and come from a wide variety of backgrounds.
Features: The 32 chapters cover a wide range of topics, including the nature of supportive care and caring for specific dementias such as Huntington's disease, HIV, and Down syndrome. Hospitalizations, pain, and pharmacologic management of symptoms are also discussed. Approaches to patients at the advanced stages of dementia are carefully reviewed in several chapters. A fine concluding chapter synthesizes the preceding chapters and gives models and diagrams of the care embodied in the supportive care model.
Assessment: This book underscores that there are many dementing illnesses and that there are early, middle, and late stages of the illness, each with different approaches and goals, and each with a different burden on the loved ones of the demented person. As the disease progresses, these surrogates come to the fore in decision-making and grieving. This book explores the nuances of optimal care for persons with dementia.

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