The Kissing Bug: A True Story of a Family, an Insect, and a Nation's Neglect of a Deadly Disease

Who does the United States take care of and who does it leave behind? This is a riveting investigation of infectious disease, poverty, racism, and for-profit health care-and the harm caused by decades of silence.

Growing up in a New Jersey factory town in the 1980s, Daisy Hernández believed that her aunt had become deathly ill from eating an apple. No one in her family, in either the United States or Colombia, spoke of infectious diseases, and even into her thirties, she only knew that her aunt had died of a rare illness called Chagas. But as Hernández dug deeper, she discovered that Chagas-or the kissing bug disease-is more prevalent in the United States than the Zika virus. Today, more than three hundred thousand Americans have Chagas.

Why do some infectious diseases make headlines and others fall by the wayside? After her aunt's death, Hernández begins searching for answers about who our nation chooses to take care of and who we ignore. Crisscrossing the country, she interviews patients, epidemiologists, and even veterinarians with the Department of Defense. She learns that outside of Latin America, the United States is the only country with the native insects-the “kissing bugs”-that carry the Chagas parasite. She spends a night in southwest Texas hunting the dreaded bug with university researchers. She also gets to know patients, like a mother whose premature baby was born infected with the parasite, his heart already damaged. And she meets one cardiologist battling the disease in Los Angeles County with local volunteers.

The Kissing Bug tells the story of how poverty, racism, and public policies have conspired to keep this disease hidden-and how the disease intersects with Hernández's own identity as a niece, sister, and daughter; a queer woman; a writer and researcher; and a citizen of a country that is only beginning to address the harms caused by Chagas and the dangers it poses. A riveting and nuanced investigation into racial politics and for-profit health care in the United States, The Kissing Bug reveals the intimate history of a marginalized disease and connects us to the lives at the center of it all.

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The Kissing Bug: A True Story of a Family, an Insect, and a Nation's Neglect of a Deadly Disease

Who does the United States take care of and who does it leave behind? This is a riveting investigation of infectious disease, poverty, racism, and for-profit health care-and the harm caused by decades of silence.

Growing up in a New Jersey factory town in the 1980s, Daisy Hernández believed that her aunt had become deathly ill from eating an apple. No one in her family, in either the United States or Colombia, spoke of infectious diseases, and even into her thirties, she only knew that her aunt had died of a rare illness called Chagas. But as Hernández dug deeper, she discovered that Chagas-or the kissing bug disease-is more prevalent in the United States than the Zika virus. Today, more than three hundred thousand Americans have Chagas.

Why do some infectious diseases make headlines and others fall by the wayside? After her aunt's death, Hernández begins searching for answers about who our nation chooses to take care of and who we ignore. Crisscrossing the country, she interviews patients, epidemiologists, and even veterinarians with the Department of Defense. She learns that outside of Latin America, the United States is the only country with the native insects-the “kissing bugs”-that carry the Chagas parasite. She spends a night in southwest Texas hunting the dreaded bug with university researchers. She also gets to know patients, like a mother whose premature baby was born infected with the parasite, his heart already damaged. And she meets one cardiologist battling the disease in Los Angeles County with local volunteers.

The Kissing Bug tells the story of how poverty, racism, and public policies have conspired to keep this disease hidden-and how the disease intersects with Hernández's own identity as a niece, sister, and daughter; a queer woman; a writer and researcher; and a citizen of a country that is only beginning to address the harms caused by Chagas and the dangers it poses. A riveting and nuanced investigation into racial politics and for-profit health care in the United States, The Kissing Bug reveals the intimate history of a marginalized disease and connects us to the lives at the center of it all.

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The Kissing Bug: A True Story of a Family, an Insect, and a Nation's Neglect of a Deadly Disease

The Kissing Bug: A True Story of a Family, an Insect, and a Nation's Neglect of a Deadly Disease

by Daisy Hernández

Narrated by Frankie Corzo

Unabridged — 6 hours, 55 minutes

The Kissing Bug: A True Story of a Family, an Insect, and a Nation's Neglect of a Deadly Disease

The Kissing Bug: A True Story of a Family, an Insect, and a Nation's Neglect of a Deadly Disease

by Daisy Hernández

Narrated by Frankie Corzo

Unabridged — 6 hours, 55 minutes

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Overview

Who does the United States take care of and who does it leave behind? This is a riveting investigation of infectious disease, poverty, racism, and for-profit health care-and the harm caused by decades of silence.

Growing up in a New Jersey factory town in the 1980s, Daisy Hernández believed that her aunt had become deathly ill from eating an apple. No one in her family, in either the United States or Colombia, spoke of infectious diseases, and even into her thirties, she only knew that her aunt had died of a rare illness called Chagas. But as Hernández dug deeper, she discovered that Chagas-or the kissing bug disease-is more prevalent in the United States than the Zika virus. Today, more than three hundred thousand Americans have Chagas.

Why do some infectious diseases make headlines and others fall by the wayside? After her aunt's death, Hernández begins searching for answers about who our nation chooses to take care of and who we ignore. Crisscrossing the country, she interviews patients, epidemiologists, and even veterinarians with the Department of Defense. She learns that outside of Latin America, the United States is the only country with the native insects-the “kissing bugs”-that carry the Chagas parasite. She spends a night in southwest Texas hunting the dreaded bug with university researchers. She also gets to know patients, like a mother whose premature baby was born infected with the parasite, his heart already damaged. And she meets one cardiologist battling the disease in Los Angeles County with local volunteers.

The Kissing Bug tells the story of how poverty, racism, and public policies have conspired to keep this disease hidden-and how the disease intersects with Hernández's own identity as a niece, sister, and daughter; a queer woman; a writer and researcher; and a citizen of a country that is only beginning to address the harms caused by Chagas and the dangers it poses. A riveting and nuanced investigation into racial politics and for-profit health care in the United States, The Kissing Bug reveals the intimate history of a marginalized disease and connects us to the lives at the center of it all.


Editorial Reviews

NPR Books

"Hernández raises damning questions about which infectious diseases get attention and whom we believe to be deserving of care."

TIME

"Deftly reported. . . . a nuanced and empathetic look into the intersections of poverty, racism and the U.S. health-care system."

The New York Times Book Review

"A common but overlooked parasite killed the author’s aunt, spurring this exposé."

Bitch Magazine

"An expansive account of poverty, race, and who we consider worthy of help as it relates to location-based medical ailments."

Newsweek

"Visceral. . . . [Hernández] weaves storytelling, science and policy with striking results."

Book Public

"A riveting investigation of a rare infectious disease, racial politics and for-profit healthcare."

The San Francisco Chronicle

"Part memoir, part investigative thriller. . . . Her book shines a light on [a] neglected harm."

Reading Women

"Fascinating."

Kris Newby

"An engaging, eye-opening read for anyone looking to learn more about the human suffering caused by the collision of a parasite and years of neglect by the United States’ medical system."

Jezebel

"Trace[s] some of the most pressing questions about race and the institutions that purport to save lives in the United States, all of it held together by Hernandez’s complicated love for her once-vibrant aunt."

Book Page

"Hernández displays impressive storytelling skills in this masterfully researched volume."

Chicago Public Library

"Uncovers a story about the intersection of public health and discrimination, and a disease that will become even more virulent as climate change stretches the kissing bug habitat further north."

Foreword Reviews

"The engrossing account of a family medical mystery that led to a compassionate investigation of an underattended disease."

The New Yorker

"She movingly profiles individual patients and. . . . the divergent fates experienced by [illness] sufferers of differing incomes, origins, and ethnicities."

Angie Cruz

"Hernández writes to the heart of the story with immense tenderness, compassion, and intelligence. A riveting read."

Buzzfeed

"A trenchant work of investigative journalism. . . . weaving in cultural and political analysis, extensive research, and personal history as she chases down answers about her aunt’s tragic death from an underreported disease known as Chagas."

The Boston Globe

"A necessary read for anyone concerned about health crises across the world."

Discover Magazine

"This nuanced and timely take exposes a disease that silently harms hundreds of thousands, it also serves as a prescription for change in our public policies and health care system."

Undark Magazine

"The book is propulsive, fascinating, and tragic in equal parts, and in both style and substance it reminds us that the cold hard facts of medical science are never separate from humanity, or from our prejudices, or from our most intimate stories."

The Lancet

"Powerful."

Amy Stewart

"With The Kissing Bug, Daisy Hernández takes her place alongside great science writers like Rebecca Skloot and Mary Roach, immersing herself in the deeply personal subject of a deadly insect-borne disease that haunted her own family. It’s a tender and compelling personal saga, an incisive work of investigative journalism, and an absolutely essential perspective on global migration, poverty, and pandemics."

NBC News

"Raises questions on why a disease that kills tens of thousands a year is not more of a focus."

Shelf Awareness

"Compelling and impressive. . . . Hernández's lucid writing provides a paradigm for how to begin addressing the inequities baked into medicine."

LEAPS.ORG

"A lyrical hybrid of memoir and science reporting."

The Washington Post

"Lyrical, unflinching. . . . Hernández expertly skates the line between memoir and science tome, showing the personal effects of a disease perpetuated by a cascade of systemic failures."

Southern Review of Books

"Engaging and dynamic. . . . A reader walks away from The Kissing Bug with more knowledge and empathy than they had before and a sense that something must be done to save lives."

Danielle Ofri

"The Kissing Bug is a deft mix of family archaeology, parasite detective story, and American reckoning. A much-needed addition to the canon."

Bookmarks

"Engrossing."

INSIDER

"Through interviews with patients, doctors, and epidemiologists, Hernández weaves a narrative of the racial politics that overshadow modern healthcare."

ALTA

"Traces the effects of Chagas on minority communities, revealing how poverty, racism, and public policy have intersected to disrupt adequate healthcare interventions."

ALTA Journal

"Traces the effects of Chagas on minority communities, revealing how poverty, racism, and public policy have intersected to disrupt adequate healthcare interventions."

AUGUST 2021 - AudioFile

Biting insects and intrepid parasites populate this memoir of a misunderstood illness and a family. Narrator Frankie Corzo’s deft voice brings Daisy Hernandez’s story full circle from childhood to adulthood and then to a poignant blend of both. Hernandez was 5 when her Aunt Dora moved from Colombia to New Jersey to seek care for a parasitic illness called Chagas, transmitted by the insect Triatominae. Corzo’s capable narration of Hernandez’s research on the disease helps the listener better understand risk factors, transmission rates, and symptoms as part of the larger problem of healthcare inequity in the U.S. Additionally, Corzo’s blend of American and Latinx dialects perfectly conveys Hernandez’s bittersweet realization at the book’s end: She and her seemingly old-fashioned aunt were more alike than different. E.S.B. © AudioFile 2021, Portland, Maine

Product Details

BN ID: 2940176060249
Publisher: Blackstone Audio, Inc.
Publication date: 08/31/2021
Edition description: Unabridged
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