Your Child with Inflammatory Bowel Disease: A Family Guide for Caregiving

by North American Society for Pediatric Gastroenterology, Hepatology and Nutrition, Maria Oliva-Hemker (Editor), David Ziring (Editor), Shehzad A. Saeed (Editor), Athos Bousvaros (Editor)

Overview

A comprehensive guide to easing the discomfort of your child’s inflammatory bowel disease.

Inflammatory bowel disease (IBD) is a common condition in children and adolescents. Parents and other family members typically have many questions about the diagnosis, symptoms, and treatments associated with various forms of IBD including Crohn's disease, ulcerative colitis, and indeterminate colitis. In this book, medical experts explain all you need to know about IBD and answer important questions, including:

• What are inflammatory bowel diseases, Crohn's disease, and ulcerative colitis?
• Is there a cure for IBD?
• How is IBD going to affect my child's daily life?
• Will my child's diet change?
• Can my child still play sports?
• Will my child need surgery?
• What are the side effects of commonly prescribed medications?
• What challenges may my child face at school and socially, especially as he or she grows older?

This new edition has been thoroughly revised with updated scientific evidence. The chapters on medical therapies have been expanded to include robust discussions of emerging biologic medications and forms of nutrition used for treating IBD. A new chapter on complementary and alternative therapies expands on this topic.

Product Details

ISBN-13:	9781421423524
Publisher:	Johns Hopkins University Press
Publication date:	12/15/2017
Series:	A Johns Hopkins Press Health Book
Sold by:	Barnes & Noble
Format:	eBook
Pages:	296
File size:	4 MB
Age Range:	18 Years

About the Author

The North American Society for Pediatric Gastroenterology, Hepatology and Nutrition is the premier organization for physicians caring for children with digestive disorders in North America. NASPGHAN strives to improve the care of infants, children, and adolescents with digestive disorders by promoting advances in clinical care, research, and education. Maria Oliva-Hemker, MD, is the Stermer Family Professor of Pediatric Inflammatory Bowel Disease at the Johns Hopkins University School of Medicine and the director of the Division of Pediatric Gastroenterology, Hepatology, and Nutrition at the Johns Hopkins Children's Center. David Ziring, MD, is the associate director of the Cedars-Sinai Pediatric IBD Program and an associate clinical professor at the David Geffen School of Medicine at UCLA. Shehzad A. Saeed, MD, is a professor at Wright State University's Boonshoft School of Medicine, the chief medical value based care officer at Dayton Children's Hospital, and the chief medical officer at Dayton Children's Health Partners. Athos Bousvaros, MD, MPH, is an associate professor at Harvard Medical School, the associate director of the Inflammatory Bowel Disease Center, and the associate chief of the Division of Gastroenterology, Hepatology, and Nutrition at Boston Children's Hospital.

Maria Oliva-Hemker, MD, is the Stermer Family Professor of Pediatric Inflammatory Bowel Disease at the Johns Hopkins University School of Medicine and the director of the Division of Pediatric Gastroenterology, Hepatology, and Nutrition at the Johns Hopkins Children’s Center.
Shehzad A. Saeed, MD, is a professor at Wright State University’s Boonshoft School of Medicine, the chief medical value based care officer at Dayton Children’s Hospital, and the chief medical officer at Dayton Children’s Health Partners.
Athos Bousvaros, MD, MPH, is an associate professor at Harvard Medical School, the associate director of the Inflammatory Bowel Disease Center, and the associate chief of the Division of Gastroenterology, Hepatology, and Nutrition at Boston Children’s Hospital.

Table of Contents

List of Contributors
Preface
Acknowledgments
Part I
1. An Overview of Inflammatory Bowel Disease
2. IBD Causes and Risk Factors
3. Why Is IBD So Difficult to Diagnose?
Part II
4. The Symptoms of IBD
5. How to Prepare for a Visit to Your Child's IBD Doctor
6. Office Visits and Procedures for Children with IBD
7. Laboratory Testing
8. Imaging Studies
9. Endoscopic Exams
Part III
10. Medical Treatments
11. Surgery
12. Managing Specific Problems
13. The Role of Nutrition
14. Complementary and Alternative Therapies
Part IV
15. Family Life
16. Different Ages, Different Issues
17. Following the Treatment Plan
18. School Days
19. Insurance and Other Financial Issues
Part V
20. Transitions from School to Work and Independent Living
21. Transitions from Pediatric to Adult Health Providers
Part VI
22. Where to Get Additional Help and Information
23. Frequently Asked Questions
Appendix
Glossary
Index

What People are Saying About This

Kimberly Frederick

"This is an invaluable resource for any family living with inflammatory bowel disease. Written clearly and accessibly, it covers all the important aspects of IBD. It’s a wonderful companion guide, full of information, support, and resources that will help a child and his or her family manage all facets of the disease."

Laura Wingate

This is an invaluable guide, full of information and resources that can help families manage all facets of inflammatory bowel disease.

From the Publisher

This is an invaluable guide, full of information and resources that can help families manage all facets of inflammatory bowel disease.
—Laura Wingate, Crohn's and Colitis Foundation

Editorial Reviews

Reviewer: Deborah R Flomenhoft, MD (University of Kentucky College of Medicine)
Description: This guide for families with children with inflammatory bowel disease (IBD) aims to help them understand what medical tests and therapies their children may be undergoing and how to guide their children through successful and happy childhoods.
Purpose: It provides information on diagnosis, treatments ranging from medication to surgery, and how to understand and interpret children's symptoms. It also spends significant time discussing dealing with the psychosocial aspects of chronic disease.
Audience: The book is written for families of children with IBD, but it also is an excellent book for primary care providers who may have IBD patients in their practice.
Features: After covering diagnosis, symptoms, and differential diagnosis of IBD, the book devotes considerable space to therapies for inflammatory bowel disease. This portion is densely written and may not be easily accessible to most families with less than postgraduate education. While the medical terminology is simple for the medical community, it is still fairly difficult for those outside the medical community. The organization, particularly of the chapter on medications, also may be confusing for parents. While medical professionals understand that cyclosporine and tacrolimus belong with the immunomodulators (in the section preceding and separate from the biologics), parents likely read an escalation of therapy and understand that the biologics are more dangerous than the previously mentioned immunomodulators. It might be more useful for parents and families to have medications divided into commonly used medications and less commonly used medications. Enteral nutrition should have been in the medication section instead of the nutrition chapter. The most exciting part of this book addresses how families and patients cope day to day with IBD, tackling topics such as body image, parenting, and medication adherence. This part is well written and accessible to families at many education levels.
Assessment: I am glad that this book exists and I have not seen anything comparable. Families do need a guide to help them cope with the overwhelming amount of information presented to them when a child is diagnosed with IBD. They also need a guide that helps them navigate all of the attendant fears associated with having a child with IBD. This is an excellent first effort. I hope that future editions will be more user friendly for less educated parents.

Doody's Review Service

An interesting and easy read . . . anyone who has been diagnosed with a condition that fits within the IBD definition would also benefit from the read.
--Nursing Times

This is an invaluable resource for any family living with inflammatory bowel disease. Written clearly and accessibly, it covers all the important aspects of IBD. It's a wonderful companion guide, full of information, support, and resources that will help a child and his or her family manage all facets of the disease.
--Kimberly Frederick, LCSW, MSW, Crohn's & Colitis Foundation

From the Publisher

An interesting and easy read . . . anyone who has been diagnosed with a condition that fits within the IBD definition would also benefit from the read.

Nursing Times

This is an invaluable resource for any family living with inflammatory bowel disease. Written clearly and accessibly, it covers all the important aspects of IBD. It’s a wonderful companion guide, full of information, support, and resources that will help a child and his or her family manage all facets of the disease.

Kimberly Frederick

An interesting and easy read... anyone who has been diagnosed with a condition that fits within the IBD definition would also benefit from the read.

Nursing Times - Paul Watson