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A Face for Picasso: Coming of Age with Crouzon Syndrome
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There was danger in the kind of beauty I was desperate to achieve.
At only eight months old, identical twin sisters Ariel and Zan Henley were diagnosed with Crouzon syndrome-a rare condition where the bones in the head fuse prematurely. They were the first twins known to survive it.
Growing up, Ariel and her sister endured numerous medical procedures to keep them alive. Doctors expanded the twins' skulls and broke bones to make room for their growing organs. After each surgery, the sisters fe...
At only eight months old, identical twin sisters Ariel and Zan Henley were diagnosed with Crouzon syndrome-a rare condition where the bones in the head fuse prematurely. They were the first twins known to survive it.
Growing up, Ariel and her sister endured numerous medical procedures to keep them alive. Doctors expanded the twins' skulls and broke bones to make room for their growing organs. After each surgery, the sisters fe...